Sunday 29 April 2007

My early letters contained this (November 2003) as part of a letter to friends and colleagues.


FACING REALITY



Facing reality. A phrase we all use at various stages of our lives. We use it to give us resolve. To clarify our options. To justify our choices .

Often we combine this with the sentiment, "at least we don't have it as bad as ..." and make reference to someone we know in a worse state.

We might adopt a more optimistic stance and count our blessings. With words like "at least we still have our health ".

Some of us simply can't deal with reality and prefer to ignore it. Does it exist if I can't see it? We try to "sleep" it off, in the vain hope it will go away.

Blame can also be an effective tool in the short term. We blame others, we blame circumstances or the system. It is easier to be the victim than to deal with your difficulties.

Self-pity is a very common place to end up. We can get many people to sympathise and feed self-pity and often it's easier to choose "friends "who do this at the exclusion of others.

The rebel or fighter might simply apply the hate filled strategy "I won't let the b?????ds get me down ".

My life has changed irreversibly and inexplicably. My days are slow and my nights even slower. Each moment is filled with pain and frustration which subsides at night after a sleeping tablet. I face the prospect of a life devoid of physical contact except when being bathed or dressed. I have not changed, but my ability to walk, move and talk has. I can't shake hands or initiate any contact but I appreciate a reassuring pat or a kiss on the cheek.

How do you face the reality of paralysis and loss of speech?

I focus on getting through each day. I fail often. I do the best I can.In reality I can do no more.

Monday 23 April 2007

Don't waste time holding on to things that hurt. Don't take pride in your pain. Don't wear your suffering like a cross. Let your spirit soar,set it free from the heavy weight of a a bad memory. Your heart is a dove not a rock, desire freedom, hope, love be not afraid or lethargic.

The cost of freedom is paid once. Fear and lethargy require regular payment and are never satisfied.

Love freely, without concern for compensation.

Help me God.

Tuesday 10 April 2007

It's like this, you hang in, you're "brave ", "courageous". You know the truth?It's rubbish. It takes even more courage to admit you want to give up and face the failure. To hate your life and your loneliness to see your children grow up and drift out of touch. To see your family and friends put you into the "duty box".

So you lust after the admiration, the weak praise, the fleeting visit. The "braver" you are the fewer the visits. So weakness is despised, a turn-off,a downer, a good reason to stay away. Strength on the other hand, takes the pressure off. Either way just ignore the problem, he'll go away, he's fine.

Monday 9 April 2007

The senseless feeling.

Aching for attention, my restless body and mind wage war.
The body bound in paralysis the body urges the mind for some intimacy.
The fruitless hope of thought mocks the mind at the realisation of the same familiar pattern.

Am I just too proud?
Can't I admit my need?
Too weak to show my vulnerability?

I lie awake, tortured.
Desire unfulfilled.
Hope in what?

A piece, a slither, a crack in the doorway of hope.
No hope lies beyond.
Can I find peace?

Saturday 7 April 2007

Echoes

13 September 2004

I cried today.
Big sobs,
as the tears rolled down my cheeks.
I am tired of fighting,
Tired of stumbling,
Tired of the emptiness


It’s a hopeless thing.
To get up each day,
After a restless night
To find courage, purpose and will
To do it all again
Only, what for?

Where the companion to wipe away the tears.?
To soothe the everlasting pain?
To remind me of a better time.
Echoes are the only sound
Only emptiness echoes,
People fill the space where echoes live.

Loneliness and echoes,
The only friends
In emptiness.